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Team Cody
Srong Sroy
Story
This year I will be participating in the local run for a cure in honour of Cody and to help raise vital funds for Neuroblastoma Childhood Cancer research.
Neuroblastoma is a rare Childhood Cancer that affects the Central Nervous System and often affects children under the age of 5. With only a 50 percent survival rate in aggressive Neuroblastoma, 1 out of 2 children will die from this disease. We need to find less harsher treatments, we need to find a cure for this hideous disease. Through funding and research, I pray that future Neuroblastoma families will never have to experience the pain, loss and heartache that we have endured over the years.
Please help me make a difference!
As Childhood Cancer Awareness month approaches I would like to share Cody’s story.
Cody was diagnosed with stage 4 high risk Neuroblastoma in September 2009 at the age of 3. He went through 16 months of intense treatment which consisted of Chemotherapy, Surgery, Mega therapy, Radiotherapy and Immunotherapy. In January 2011 we were given the great news that Cody was in remission and not long after he started Kindy.
In July 2013 we received the devastating news that Cody had relapsed in the neck, chest, bone and bone marrow. Once again our world was shattered, only this time it was worse as we were told that there is no cure for relapsed Neuroblastoma. Any treatment now was to only buy our son some precious time. Cody was then put on a new clinical trial making him the first child in WA to ever receive this combination of drugs. After 11 rounds of chemo his cells became resistant and treatment was ceased. The last treatment option we had left was radiation which was called Lutetium Octreotide therapy. This radiation is commonly used for adult Neuroendocrine tumours. It had only been trialled on 8 children in Europe for relapsed/recurrent Neuroblastoma, making Cody the first Child in Australia to ever trial this drug. After 2 rounds of this therapy, the cancer had spread to his liver and he gained his angel wings on the 29th December 2014 at the age of 8.
Cody Jay Vang
23/05/2006 - 29/12/2014
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Neuroblastoma Australia
Neuroblastoma is a devasting childhood cancer with the average age of diagnosis being just two years old. With survival of rates for aggressive neuroblastoma at only 50%, this disease claims more lives of children under the age of five than any other cancer.
We don’t need a miracle; just more research.
Neuroblastoma Australia, is a registered charity founded by families with children affected by the disease and has raised over $1.7 million for research into a cure for this complex cancer which almost exclusively affects young children.
You can make a difference. Help raise funds for research into more effective and less toxic treatments for neuroblastoma today.
To get involved, or learn more, visit our charity website: www.neuroblastoma.org.au
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